Monday, September 28, 2009

Welcome to the community!

I just wanted to post an update for our family. We welcomed into the world our daughter, Audrey, on August 31st. Audrey now joins her older brother Owen in the PKU community.

We received the diagnosis 2 weeks ago and are happy to report she has taken off on her medical formula and is still gaining weight steadily! I am working hard to keep nursing her...not an easy job with 2 kids, formula, logging of feedings and a pump. But, I am determined (i.e. stubborn?) to do it all.

So, please welcome a new girl to the block... our little Audrey girl.

Monday, September 21, 2009

Have you seen this?

This movie made me so much more grateful for the newborn screen. PKU may not be easy, but at least it can be treated.